I am here today to propose a book idea. Since many disabled females face abuse and guardianship practices that don’t line up with the person’s wishes, I’d like to propose a guide for victims that tells them, you are not alone, and gives them the tools to be proactive in cases where even family can’t be trusted. I propose an idea that not only empowers folks like me who should’ve been able to look into orgs and advocacy groups, but the tools should have been in my favor. When my parents got their guardianship, I had no tools, nothing, no hope of escape and ability to become an independent person. I was more or less not able to contact orgs and people about why the guardianship was abusive or potentially dangerous. When I thought up this book idea, I thought it might be appropriate to do a sidenote about Carrie Kasem, the famous Casey’s daughter, to prove that guardianship for both elders and disabled people can and could become dangerous, especially when the parental figures die. As a blind woman, I asked myself and therapists the question of what and why someone would do this if they know I needed something upon their deaths. My parents, probably the most insensible people on the planet, did the only sensible thing they had to, and asked a doctor to fill out a form that said I was okay. Well, I’ve gotten backlash from every corner of the blind community, from Iowa to Wisconsin and beyond, that basically states that I must be under the care of a guardian because I am a “psycho” or “loonbag”, both very stigmatizing and insensitive things to say about me. To counter this, I want to write a book about my experiences, publish it, and have it sold as hardcover and Kindle and apple books. I hope Amazon Publishing will take this seriously, and I will be thinking about reading other books so I can gather some information. For disabled adults, specifically, and the disabled young adults, I might write another guide for them specifically because that’s the most vulnerable age group. Young adults with disabilities should be able to transition, live independently, and not have a parent or guardian control every aspect of their life. The first thing is that I want to say to those young adults that like it or not, your parents are going to die. Everybody dies, even the youngest among us learns about death, but upon the death of a guardian, sometimes a professional guardian might take over. This could lead to death for the disabled adult, a nursing home stay, and so many other problems. I want to interview people who’ve been through this, rigmarole, and I want to do a guide for both adults and young adults with disabilities. Maybe though I could roll the two guidebooks into one, and I wrote a preface to the book last night. I have pages on my mac to thank for this, but the problem is that the templates keep crashing on me. Any help would be appreciated regarding the logistics, and I do want someone to track down a publisher who will work with me. So, in the spirit of this book idea, I might be taking a slight break from writing here in the blog to address the book. Comments will remain disabled throughout the period of the book’s writing and proposals, but there will be acknowledgements for people who actually give a damn and help with the manuscript.
Thank you all for your cooperation. I will give details about where the book wil be published, and I will give a link to all formats when it is complete.