A Very Brief Intro to Care for a Disabled Person: the 101, 102, and Some Biz

Dear Readers,

How many of us reading my blog are disabled? Raise your hand, and if not your hand, raise your eyebrows, raise your foot, whatever it is just raise something. Haha just kidding. You don’t have to do that.

The reason I ask is because I’m wondering of those disabled readers of my blog, how many of you do care of some sort? Homemaker? Nurse care? WHatever it is, just say it.

YOu don’t have to be shameful about it, just say what you will.

Anyway, I have a few confessions to make: the home care system is not consistent in all states.


In some metropolitan ones like New York and Massachusetts, where disability is more acceptable and respected, the power goes straight to the consumer. I should have this same overt power in Colorado, but I’m planning on this altogether.

For one, I’m concerned. I had five different aids, personal home assistants, go through my doors, and no long term relationship built on trust could be established. What professionalism, you might ask? As someone who barely has enough friends in state to even talk about these frustrations with, I have none other than my FB and blog to voice my concerns, and I’m concerned that third parties think they know what’s best for me.

Trent and myself researched a company in New York, based there, that puts the power of hiring, firing, and all that in the hands of the consumer. I’d rather do that kind of modeling other than traditional healthcare models. Why? Because I have a few folks I could train to be personal assistants, and they could do almost anything they feel is needed, according to the plan and stuff.

God forbid if I had a broken leg, I would need someone there other than Trenton, someone to give him a break mainly, to help with dressing and bathing and other tasks that might be painful to do with a broken leg. I want the power to fire any caregiver who is not checked out on criminal backgrounds, or someone my caseworker, fiance, and myself all deem giving you the willies, if you know what I mean.

So here, for your satisfaction, is a brief intro in layman’s terms, to navigating your own personal care plan and action upon it.

First, you should apply for services for the blind and disabled if offered in your state. Make sure you qualify and all that jazz. Paperwork from doctors is essential, and I won’t go into all that Medicalese.

Second thing, the hiring and screening process. Step 2 of this guide is simple. IF a caregiver gives you the weirdest feelings, don’t hire him/her. Always hire someone if they check out on criminal backgrounds as mentioned before, like if they don’t have an arrest record dealing with disability or fraud. I would never, for instance, hire a stray dog from some homeless shelter who has a long criminal past for a caregiver. I would, however, hire someone with good references and a great med background. Someone who went to nursing school and can deal with disabled people should be first on your list.

Once the hiring process is done, you get to choose what if any tasks should be on a thing called a plan of care, and how to complete said tasks. IF you are approved for medical help, make sure you tell your nurse or aid where the meds are stored. Don’t forget if you hire a homemaker, she is able to prep food for you in the desired way. Don’t be shy about asking questions.

With consumer directed choices style healthcare, you are responsible for logging in the caregiver’s hours, and that’s a simple thing that we all do at work. IF she’s not performing the roles she should, you can deal with it yourself. As any good employer should know, firing is essential to keep the things in your home safe if they’ve been taken, or essential to keeping confidentiality if someone is trying to deny you services and stuff. Now, here’s one more thing.

IF you fire someone, you can go back to step 2 and the hiring process all over again. Remember the screening strategy, make sure the person tells you about any weird activities in his/her past.

Anyway, home care 101 pretty simple stuff. DIsabled people, depending on their disabilities, can benefit from home and healthcare of some sort. Doctors, physicians, etc., who knows. Home health aids can help read the mail, do medical tasks if needed, and help in case of injury. An aid’s responsibility should be to care for the individual as he/she sees fit. With this in mind, I think I’ll switch. I want more power over the people who come and go, not a sighted supervisor who is able to bother if anything.

Author: denverqueen

My name is Beth. I'm blind from birth and enjoy the blogging atmosphere. I am a creative person, a musician, a writer, etc. This is me. Take it or leave it.

3 thoughts on “A Very Brief Intro to Care for a Disabled Person: the 101, 102, and Some Biz”

  1. as far as any care is concerned beth, all I get is once a fortnight a cleaner comes in from my local council and on the opposite week a lady from my local council takes me to do my shopping which is great because a professional relationship has been built up over the past few years as most tasks I can do myself. showering myself and toileting and shaving I do my own clothes washing and put it out on the line I do cook using the microwave but who wants to cook for 1 person when I could eat in company here in Australia the last government rolled out the NDIS or national disability insurance scheme. for a government to roll this out I do question it a bit as there have been a lot of teething problems with the scheme myself I’d prefer to work with people I know and not have it constantly changing but this is in Australia and in the country.


  2. Very good comment Kyle. Australia is quite different from the United States, and I think it is more of a welfare state in the u.s. is trying to become right now. Things in the United States politically aren’t right. But not to worry, things will get settled once and for all.


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